The Stakeholder Community and Outreach Center

The Stakeholder Community and Outreach Center (Stakeholder Center) is a forum for a diverse range of clinical decision support (CDS) stakeholders to come together to help shape the current and future landscape of patient-centered clinical decision support (PC CDS). Through its Workgroups, the Stakeholder Center will provide thought leadership for the Clinical Decision Support Innovation Collaborative (CDSiC) activities, develop products that will help advance CDS, and offer input on CDSiC Innovation Center projects.

The design, implementation, and measurement of PC CDS involves a range of stakeholders with each playing an important role in ensuring that CDS provides patients, caregivers, and care teams the information they need to make healthcare decisions. The CDSiC Stakeholder Center brings this expertise together in four Workgroups to identify and address critical needs in each step of the PC CDS development process.

Each of the CDSiC Workgroups is focused on a specific topic area that is critical to the advancement of PC CDS. As they come together, these Workgroups will collectively develop 12 high-quality, written products that will inform the activities of the CDSiC Innovation Center and support the external community in advancing the development, implementation, and measurement of PC CDS to reach short- and long-term CDS goals. They will also provide thought leadership and input for other components of the collaborative, ensuring that activities of the CDSiC are informed by a range of stakeholder perspectives. 

Learn more about the CDSiC Workgroups:

CDS Outcomes and Objectives Workgroup: This Workgroup is exploring how to measure clinical outcomes, as well as safety and effectiveness of patient-centered clinical decision support (PC CDS). Over time, the Workgroup will also examine the impact of the CDSiC’s activities on the broader CDS community. The reports, resources, and tools created by this Workgroup will support the CDSiC and the broader CDS community in measuring the outcomes of PC CDS interventions. Through Fall of 2023, the Workgroup will be focusing efforts on:

  • Conducting an environmental scan to identify outcome domains and the most appropriate outcomes measures for PC CDS within those domains.
  • Developing a taxonomy for patient preferences relevant to PC CDS.
  • Developing a research framework for how PC CDS can be used to support shared decision-making.

Scaling, Measurement, and Dissemination of CDS Workgroup: This Workgroup is identifying measures of PC CDS adoption, implementation, and use to support the scaling of safe and effective CDS tools beyond one-off settings.  The reports, resources, and tools created by this Workgroup will consider factors such as how PC CDS affects the way clinicians spend their time at work and how to measures for patient use of and engagement with PC CDS. Ultimately, the Workgroup will help demonstrate the value of CDS in delivering evidence-based, high-quality care that is responsive to the needs and preferences of patients. Through Fall of 2023, the Workgroup will be focusing efforts on:

  • Outlining a standard approach for describing how PC CDS interventions are designed, developed, deployed, used, maintained, and evaluated.
  • Compiling a catalog of approaches used to measure the effects of PC CDS interventions on clinician workflows and patient activities, or “life flows.”
  • Developing recommendations on strategies and measures for evaluating the performance and value of PC CDS interventions.

Trust and Patient-Centeredness Workgroup: This Workgroup is expanding on prior work related to trust carried out by the AHRQ-funded Patient-Centered CDS Learning Network by working to increase transparency in the processes of PC CDS design, development, testing, implementation, and use. To do this, the Workgroup is focusing on the development and dissemination of trust-building PC CDS products with an emphasis on CDS that reflects the needs of patients and clinicians and supports shared decision-making between patients and their care teams. The reports, resources, and tools developed by the Workgroup will support the is the design and uptake of trustworthy, PC CDS. Through Fall of 2023, the Workgroup will be focusing efforts on:

  • Creating a handbook for developers on best practices for incorporating patient-centered inputs into CDS development.
  • Compiling best practices to promote patient partnerships in co-design and co-deployment of PC CDS
  • Developing a framework for defining the factors that enhance or detract from source credibility and a series of recommendations for increasing source credibility of PC CDS artifacts among providers and patients.

CDS Standards and Regulatory Frameworks Workgroup: The Standards and Regulatory Frameworks Workgroup is identifying, monitoring, and promoting standards for the development of PC CDS, and examining the current state of the regulatory environment that influences how PC CDS is developed and used. The Workgroup will also recommend ways to enhance existing standards and identify areas where new standards and regulatory frameworks are needed. The reports, resources, ands tools developed by the Workgroup will support the creation of standards-based PC CDS that can be scaled across systems to support patients and clinicians in making evidence-informed healthcare decisions. Through Fall of 2023, the Workgroup will be focusing efforts on:

  • Conducting an environmental scan of existing standards and regulatory frameworks for PC CDS.
  • Developing a report that describes the needs and potential approaches to addressing the lack of interoperability between the electronic health record (EHR) and other health IT systems used by healthcare providers and patient apps.
  • Compiling a report on the current state of adoption and use of data standards for collecting and using patient preference data for PC CDS and developing a set of recommendations to address gaps or implementation barriers for these standards.